Search Results for keywords:"Heritable Disorders"

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Search Results: keywords:"Heritable Disorders"

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  • 2021-00095 — Meeting of the Advisory Committee on Heritable Disorders in Newborns and Children
    Type:Notice
    Citation:86 FR 1519
    Reading Time:about 3 minutes

    The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) will hold a public meeting on February 11-12, 2021. This meeting, which will be held via webinar, aims to discuss newborn screening programs and improvements to the national screening guidelines. Topics include the review of screening conditions, updates on condition nomination forms, and innovations in long-term follow-up care. Public registration is required by February 10, 2021, and participants can submit written or oral comments in advance.

    Simple Explanation

    The Advisory Committee on Heritable Disorders in Newborns and Children is having a public meeting over the internet on February 11 and 12, 2021, to talk about how to make sure newborn babies get tested for certain health conditions. People can listen in and share their thoughts, but they need to sign up by February 10, 2021.

  • 2025-01218 — Meeting of the Advisory Committee on Heritable Disorders in Newborns and Children
    Type:Notice
    Citation:90 FR 5916
    Reading Time:about 3 minutes

    The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) is holding a public meeting online on February 13-14, 2025. This meeting will cover several important topics related to newborn and childhood screening for genetic disorders, including updates on research into metachromatic leukodystrophy and discussions on genomic sequencing in newborns. While no votes on new screening conditions are planned, the public can share comments and submit statements on the agenda items. More information and registration details can be found on the ACHDNC website.

    Simple Explanation

    The government is holding an online meeting to talk about health checks for babies to spot hidden illnesses early. People can join to listen and share their thoughts, but no big decisions will be made yet.