The National Institutes of Health, part of the Health and Human Services Department, has announced a proposed data collection project that requires public comments under the Paperwork Reduction Act of 1995. The project, titled the Genetic Testing Registry, aims to collect detailed information on the availability and scientific basis of over 26,000 genetic tests. This registry is intended to help clinicians by providing insights into the accuracy, validity, and usefulness of genetic tests. The NIH seeks approval for the project to continue for three years, and public comments are requested within 60 days of the notice publication.
Simple Explanation
The NIH wants to keep collecting information about many different genetic tests to help doctors understand them better, and they are asking people to share what they think about this plan. They noticed some questions people might have, like how much it will cost or how much time it will take to do this, but they haven't answered those yet.